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Children with disabilities and their families

Abstract

The 2001 Participation and Activity Limitation Survey (PALS) is a post-censal survey of adults and children whose everyday activities are limited because of a condition or health problem. A sample of those persons who answered "Yes" to the 2001 Census disability filter questions were included in the PALS survey population. Approximately 8,000 children (aged 0 to 14) living in households in the 10 provinces were selected to participate in the children's component of the survey. Persons living in institutions, on Indian reserves, and in the Yukon, Northwest Territories and Nunavut were excluded. The data were collected after the 2001 Census, between September 2001 and January 2002. Note that information on children with disabilities was gathered through interviews with their parents or guardians.

Using the PALS data, this article describes the lives of children aged 5 to 14 who have disabilities and the impact of their disability on the daily activities and employment situation of their families.

Specific themes covered are:
-help with everyday activities received by children with disabilities;
-parents access to formal and informal help;
-impacts of the child's disability on the family's employment situation;
-children's access to specialized aids and services; and
-household income.

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